EUROPEAN DOWN SYNDROME ASSOCIATION

The silent crisis: 88% of families face isolation  

88% of parents report significantly reduced social lives

Loneliness is not just a statistic for families of people with Down syndrome in Europe; it is a daily reality. During the recent World Down Syndrome Day event in Brussels, the European Down Syndrome Association (EDSA) showed shocking findings from a landmark survey that exposed the severe fragility of social networks for the Down syndrome community.  The results paint […]

EDSA event at the European Parliament for WDSD2026

WDSD2026 EU

On 25 March 2026, EDSA organised an event in the European Parliament for the World Day Syndrome Day together with EU for Trisomy 21 and Jerome Lejeune Foundation.  The theme of this year’s World Down Syndrome Day was “Together Against Loneliness.” Two events were organised: “Coffee for Inclusion” and the conference “Together Against Loneliness.” The […]

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