The latest EDSA Spotlight took place on 27 May 2026 and featured Julian Hallett, Services Development Manager at the UK Down Syndrome Association (DSA). He presented the organisation’s services, programmes and achievements across England, Wales and Northern Ireland.
Founded in 1970, the UK DSA:
- Supports approximately 40,000 people with Down syndrome
- Works with more than 130 affiliated local support groups
- Provides support throughout the lifespan
- Offers information, advocacy, training and specialist advice
- Maintains more than 500 free online resources
- Responds to around 10,000 helpline enquiries each year
The presentation also highlighted the DSA’s commitment to inclusion and self-advocacy:
- The Our Voice programme enables adults with Down syndrome to contribute to research, consultations and service development.
- People with Down syndrome are employed as Inclusion Advisors and Associates.
- Online support groups connect families across the country.
Participants also learned about WorkFit, the DSA’s employment programme, which:
- Works with employers to identify suitable job opportunities
- Supports recruitment, job matching and workplace inclusion
- Has helped hundreds of people with Down syndrome access paid employment
- Achieves a 92% employment sustainability rate after one year
The webinar demonstrated how a national organisation can combine information, advocacy, self-advocacy, training and employment support to improve outcomes throughout life.
EDSA warmly thanks Julian Hallett and the UK Down Syndrome Association for sharing their expertise and inspiring organisations across Europe.
