Last updated: 06/12/2025
The European Down Syndrome Association (EDSA) (“we”, “our”, “us”) is committed to protecting the privacy of all visitors and users of our website edsa.eu.
This Privacy Policy explains how we collect, use, store, and protect your personal data in accordance with the General Data Protection Regulation (GDPR) and applicable European data protection laws.
By using our website, you agree to the practices described in this Privacy Policy.
1. Data Controller
European Down Syndrome Association (EDSA)
Website: https://edsa.eu
Email: edsa.eu@gmail.com
EDSA is responsible for determining the purposes and means of processing personal data collected through this website.
2. Personal Data We Collect
We may collect the following categories of personal data:
2.1. Data you provide voluntarily
- Name
- Email address
- Contact information submitted through forms
- Information submitted by member organizations
- Newsletter subscription data
2.2. Automatically collected data
When you use our website, certain information is collected automatically:
- IP address
- Browser type and version
- Device information
- Pages visited and referring URLs
- Cookies and tracking technologies (see Cookie Policy)
2.3. Data related to Store Locator (if used)
The Store Locator feature may collect:
- Location search queries
- Geographical location (if permission granted by the user)
No precise geolocation is stored unless explicitly allowed by the user’s device/browser.
3. Purpose of Data Processing
We process your personal data for the following legitimate purposes:
- To operate and maintain our website
- To respond to contact requests and inquiries
- To manage and communicate with member organizations
- To provide access to EDSA resources and updates
- To send newsletters (with explicit consent)
- To improve website performance and user experience
- To ensure website security and prevent misuse
We do not sell or share your personal data for commercial purposes.
4. Legal Basis for Processing
We process your data on the following legal grounds:
- Consent — for newsletters, cookies, contact forms
- Legitimate interest — for website analytics, security, and communication with members
- Contractual necessity — for services requested by member organizations
- Legal obligations — when required to comply with EU law
5. Data Sharing and Third Parties
We may share personal data with trusted third parties only when necessary:
- Web hosting providers
- Email newsletter services
- Analytics providers (e.g., Google Analytics)*
- Plugin services such as Store Locator
These providers comply with GDPR and process data only under our instructions.
We do not share data with advertisers or unrelated third parties.
*If Google Analytics is used, IP anonymization is enabled.
6. International Transfers
If personal data is transferred outside the European Economic Area (EEA), we ensure protection through:
- EU Standard Contractual Clauses (SCC)
- Compliance with GDPR data transfer mechanisms
7. Data Retention
Your data is retained only as long as necessary for the purposes outlined above:
- Contact inquiries: up to 12 months
- Newsletter data: until you unsubscribe
- Analytics data: according to provider retention settings
- Member organization data: as long as membership is active
You may request deletion at any time.
8. Your Rights (GDPR)
You have the following rights regarding your personal data:
- Right to access
- Right to rectification
- Right to erasure (“right to be forgotten”)
- Right to restrict processing
- Right to object
- Right to data portability
- Right to withdraw consent at any time
To exercise your rights, contact us at:
edsa.eu@gmail.com
9. Security of Your Data
We implement appropriate technical and organizational measures to protect your personal information, including:
- SSL encryption
- Secure hosting
- Limited data access
- Regular security audits
No system is 100% secure, but we take all reasonably necessary measures.
10. Links to External Websites
Our site may contain links to third-party websites.
We are not responsible for their content or privacy practices.
We encourage you to review their privacy policies.
11. Updates to This Policy
We may update this Privacy Policy from time to time.
Changes will be posted on this page with an updated “Last updated” date.
12. Contact Us
For questions regarding this Privacy Policy or your data rights, contact us at:
edsa.eu@gmail.com
Website: https://edsa.eu