EUROPEAN DOWN SYNDROME ASSOCIATION

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Stay up to date with the latest developments in the Down syndrome community across Europe. From advocacy efforts and upcoming events to research updates and inspiring stories, EDSA keeps you informed on key initiatives that promote inclusion and support. Check back regularly for news, updates, and opportunities to get involved!

Loneliness is not just a statistic for families of people with Down syndrome in Europe; it is a daily reality. During the recent World Down Syndrome Day event in Brussels, the...

Brussels, 2026 – The European Down Syndrome Association (EDSA) is proud to announce a transition in its leadership at the European level.   On the 9-10 May 2026, is the European Disability Forum (EDF) general assemble and elections,...

On 25 March 2026, EDSA organised an event in the European Parliament for the World Day Syndrome Day together with EU for Trisomy 21 and Jerome Lejeune Foundation.  The theme...

Over the past twenty years, children and young people with Down syndrome have had more opportunities to be included in mainstream education (with the support of a teaching assistant), extracurricular...

This year, Norway celebrates that CRPD has become part of the Human Rights Act, strengthening the right to equal participation. Yet meaningful inclusion takes more than legislation. Local chapters of...

We want to communicate, make friends, and be included in everyday life. When we learn new skills and grow more independent, we feel proud, capable, and confident in who we...

We asked self-advocates about loneliness. Some said that being alone from time to time can feel good. However, most described loneliness as a sad feeling.When they feel lonely, spending time...

Delivers Key Resources for Supporting Employment Inclusion! We are thrilled to announce the publication of two key deliverables from the LEAD YOUR WAY project that will significantly contribute to supporting...

World Down Syndrome Day celebrations 2026 Wednesday, 25th March Conference on TOGETHER AGAINST LONELINESSEuropean Parliament 9h30-13h: Coffee for inclusion 13h30-15h: Official session then self-advocates sharing lived experiences of loneliness, together...

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