Founding
The background to the establishment of EDSA is described in the document EDSA – The Early Years by Professor JA Rondal.
EDSA’s Presidents
Following persons have held presidential responsabilities in the association. They are in order of duty:
Carlo Piccenna d’Aspermont (Catania, Italy) 1987 until 1989
Jean-Yves Perchant (Paris, France) 1989 until 1991
Antonio Bosio (Genova, Switzerland) 1991 until 1993
Jean-Yves Perchant (Paris, France) 1993 until 1996
Prof. Jean-Adolphe Rondal (Liège, Belgium) 1996 until 2000
Prof. Juan Perera (Palma de Mallorca, Spain) 2000 until 2005
Prof. Alberto Rasore (Genova, Italy) 2005 until 2008
Cora Halder (Nuremberg, Germany) 2008 until 2014
Anna Contardi (Rome, Italy) 2013 until 2017
Patrick J. Clarke (Dublin, Ireland) 2017 until 2020
Dinka Vucovic (Zagreb, Croatia) since 2020
Archive
Documents: essentials 1, 2, 3 and Ethic
EDSA Essentials have been published on the following topics:
EDSA Essentials 1
Identity Document of the European Down Syndrome Association
→ (PDF, 48 KB)
EDSA Essentials 2
Healthcare Guidelines for People with Down Syndrome
→ (PDF, 378 KB)
EDSA Essentials 3
The Person with Down Syndrome: Orientations for Families
→ (PDF, 44 KB)
EDSA Essentials 4
Code of Ethics
→ (PDF, 59 KB)
EDSA Newsletters 2013-2015
News from EDSA-member associations about EU-projects, conferences, interesting activities or new publications.
2015
November → (PDF)
October → (PDF)
September 2015 → (PDF)
July → (PDF)
June → (PDF)
May 2015 → (PDF)
April 2015 → (PDF)
March 2015 → (PDF)
February → (PDF)
January 2015 → (PDF)
2014
October-November 2014 → (PDF)
July-August 2014 → (PDF)
June 2014 → (PDF)
May 2014 → (PDF)
April 2014 → (PDF)
February-March 2014 → (PDF)
January 2014 → (PDF)
2013
December 2013 → (PDF)
Letter of president 2008-2013
EDSA President Cora Halder (2008 – 2014) sent out short newsletters with an overview of activities from board members, interesting facts from the various EDSA associations etc.
You can download these letters from the president here:
December 2011 → (PDF, 221 KB)
May 2011 → (PDF, 740 KB)
January 2011 → (PDF, 637 KB)
August 2010 → (PDF, 248 KB)
April 2010 → (PDF, 421 KB)
March 2010 → (PDF, 247 KB)
November 2009 → (PDF, 193 KB)
June 2009 → (PDF, 375 KB)
April 2009 → (PDF, 223 KB)
January 2009 → (PDF, 245 KB)
December 2008 → (PDF, 180 KB)
EDSA-Newsletters 1990-1998
Between 1990 and 1998 a newsletter was published and distributed by EDSA.
No.11 (Dec 1998) → (PDF, 1,9 MB)
No.10 (Jun 1998) → (PDF, 2,2 MB)
No.9 (Jul 1997) → (PDF, 2,0 MB)
No.8 (May 1996) → (PDF, 2,4 MB)
No.7 (Aug 1995) → (PDF, 2,9 MB)
No.6 (Feb 1995) → (PDF, 2,4 MB)
No.5 (Apr 1994) → (PDF, 2,4 MB)
No.4 (Jul 1993) → (PDF, 2,2 MB)
No.3 (Feb 1993) → (PDF, 2,4 MB)
No.2 (Jun 1992) → (PDF, 2,8 MB)
No.1 (Jun 1991) → (PDF, 2,6 MB)
Special Issue (Oct 1990) → (PDF, 2,9 MB)