The silent crisis: 88% of families face isolation
Loneliness is not just a statistic for families of people with Down syndrome in Europe; it is a daily reality. During the recent World Down Syndrome Day event in Brussels, the European Down Syndrome Association (EDSA) showed shocking findings from a landmark survey that exposed the severe fragility of social networks for the Down syndrome community. The results paint […]
EDSA event at the European Parliament for WDSD2026
On 25 March 2026, EDSA organised an event in the European Parliament for the World Day Syndrome Day together with EU for Trisomy 21 and Jerome Lejeune Foundation. The theme of this year’s World Down Syndrome Day was “Together Against Loneliness.” Two events were organised: “Coffee for Inclusion” and the conference “Together Against Loneliness.” The […]
Let’s practice together! Croatia
Over the past twenty years, children and young people with Down syndrome have had more opportunities to be included in mainstream education (with the support of a teaching assistant), extracurricular activities, sport, culture, and everyday community life. Through projects, travel, social activities, and learning together, they develop knowledge, skills, confidence, and a sense of belonging. […]
Let’s party together! Norway
This year, Norway celebrates that CRPD has become part of the Human Rights Act, strengthening the right to equal participation. Yet meaningful inclusion takes more than legislation. Local chapters of Downs Syndrome Norway create gatherings, activities and learning opportunities across the country, year‑round. But fighting loneliness also depends on sports clubs, cultural arenas and neighbourhoods […]
Together we stand! – Malta
We want to communicate, make friends, and be included in everyday life. When we learn new skills and grow more independent, we feel proud, capable, and confident in who we are. Our hobbies and interests help us connect with others, build friendships, and feel part of our community. With the right support and opportunities, we […]
Let’s have a coffee! – Turkey
We asked self-advocates about loneliness. Some said that being alone from time to time can feel good. However, most described loneliness as a sad feeling.When they feel lonely, spending time with friends helps them feel better. Talking together, having coffee, dancing, joking at work, and listening to music are among the moments they enjoy most.They […]
WDSD in Brussels
World Down Syndrome Day celebrations 2026 Wednesday, 25th March Conference on TOGETHER AGAINST LONELINESSEuropean Parliament 9h30-13h: Coffee for inclusion 13h30-15h: Official session then self-advocates sharing lived experiences of loneliness, together with data and findings on its impact of loneliness European survey. Programme
Let’s stir things up in the kitchen together! – Switzerland (French speaking)
Cooking is not only enjoyable; it also empowers you to make informed choices about the foods that nourish your body. Preparing meals yourself encourages the use of fresh, wholesome ingredients and promotes a better balance between taste and nutrition. A nutrition course organized by members is a helpful reminder of the principles of healthy eating […]
Connection matters! – Germany
Loneliness can affect anyone, often quietly and unseen. For people with Down syndrome, feeling excluded or misunderstood can deepen that experience. Connection grows when people are met with openness, time and shared experiences. Whether through creative work, theatre, friendship or simply being present, relationships help build confidence, belonging and wellbeing. Together, we can create spaces […]
Let’s visit our loved ones! – Czech Republic
Our daughter Liliana has a gift for bringing comfort and spreading joy where it is needed most. She knows how to soothe the souls of those who sometimes feel alone. She doesn’t need many words – her quiet embrace, warm presence, gentle touch, and love that warms the heart are enough. In the photograph, she […]