T21RS Science & Society Symposium 2017
T21RS Science & Society Symposium 2017. Chicago, Saturday June 10th 2017 After a very successful and lively kick-off symposium in Paris (June 2015), the Comittee for Science & Society again organized the Science & Society Symposium at the second T21RS International Conference in Chicago, USA. On Saturday 10th of June 2017, this special session took place with the theme: […]
DownCiclopedia
Portal de información y formación sobre el síndrome de Down en lengua español An enormous amount of interesting and up-to-date-information on Down Syndrome can be found in the DownCiclopedia, part of the project Canal Down21of the Fundación Iberoamericana Down 21. In the DownCiclopedia you will find all the information published by the Fundación Iberoamericana Down21 […]
Communication in individuals with Down syndrome – which future does the research predict?
31.8.2017 – 1.9.2017, at The National Library of Norway, Oslo. The University of Oslo, in cooperation with The National Library of Norway, invites you to a conference on Down-syndrome and communication this autumn in Oslo. The conference will be held at The National Library of Norway between August 31st and September 1st, 2017. The topic of this conference […]
Supporting Bilingual Children With Special Education Needs
“Supporting bilingual children with special education needs”, is an article written by Prof. Francois Grosjean from the university de Neuchatel/Switzerland in the journal “Psychology Today“ Read more …
More funding for research on Down Syndrome
More funding for research on Down Syndrome EDSA members were asked to write a letter to their members of the european parliament (MEPs). The aim of this action was to draw attention to the need for research programs on Down syndrome in Europe. This was a joint action of EDSA together with Trisomy 21 Research […]
Roche CLEMATIS trial discontinued
Statement on CLEMATIS trial June 28, 2016 The CLEMATIS trial was a Phase II study investigating the efficacy and safety of basmisanil (RG1662) in adults and adolescents with Down syndrome. It was a 26 week, multi-centre, randomized, double-blind, three arm, parallel-group, placebo-controlled study. This phase II study did not meet its primary and secondary endpoints […]
EDSA supports International Clearinghouse for Birth Defects
March 3, 2016 marks the second annual World Birth Defects Day (WBDD). WBDD provides a platform to advocate for increased economic, political, and intellectual support to improve birth defects surveillance, prevention, care, and research by global communities and countries. Recognizing the importance of birth defects, in 2010 the World Health Assembly passed a resolution urging […]
Poseidon Project
POSEIDON is a 3 year project which has been sponsored by the European Commission. It aims to create information technology which will support people with Down’s syndrome achieve a greater level of independence in their lives. People with Down’s syndrome, their families and carers are all heavily involved in the project guiding the developers and providing user feedback at […]
UN recognise World Down Syndrome Day
EDSA welcomes the decision by the United Nations (UN) to officially recognise and endorse World Down Syndrome Day, 21st March. Recognition will help to safeguard the rights of individuals with Down syndrome across the world, particularly in the developing nations … more