T21RS Statement with regards to vaccinations for people with Down syndrome during the COVID-19 pandemic
The Trisomy 21 Research Society has conducted a survey showing that individuals with Down syndrome (particularly those over the age of 40, and younger individuals with significant comorbidities) are at increased risk to have more severe outcomes following infection with SARS-Cov-2, including secondary lung complications (1). In the context of prioritisation of vaccination for high […]
Estimation of the number of people with Down syndrome in Europe
“Estimation of the number of people with Down syndrome in Europe” an interesting and important paper, published in the European Journal of Human Genetics.The authors of this paper Gert de Graaf (Netherlands), Frank Buckley (UK) and Brian Skotko (USA) worked on a study of the European populations of people with Down Syndrome, that also EDSA members […]
Covid-19 and Down syndrome T21RS Survey, Report October 22, 2020
The Trisomy 21 Research Society has published a new research conducted by the T21RS to examine the risk of individuals with Down syndrome who have been diagnosed with COVID-19. This work has been developed and undertaken by the T21RS COVID-19 taskforce, and supported by many stakeholder groups. The report contains information on symptoms, risk factors […]
Mini-Symposium on Alzheimer Disease – 16 October 2020
T21RS is pleased to invite you to a mini-symposium hosted by EU local chapter in collaboration with the Italian DS research group. 14:30 Down syndrome and Alzheimer disease:Advancements in preclinical and clinical research Moderatore: Prof.ssa Renata Bartesaghi 14:30 – 14:55 Yann Herault, University of Strasburg:Modeling Down syndrome in animals from the early stage to the […]
Conference – Downs’ Syndrome: From Diagnosis to Therapy
It is in its fourth edition the conference “Down’s syndrome: from diagnosis to therapy” which will be held this year by telematics on 16 and 17 October 2020. This conference, which has become over the years the most significant appointment in Italy to discuss this well-known chromosomal pathology, the first of which was understood in […]
Alzheimer’s disease can develop without symptoms in people with Down syndrome
2 July 2020NEWS RELEASE A study with CPFT has shown how people with Down syndrome can develop the brain changes associated with Alzheimer’s disease by their forties, with no clinical symptoms to help detect them. Researchers in Cambridge and Spain collaborated for the first time to investigate the development of Alzheimer’s disease in people with […]
T21RS Covid-19 Survey, may 27, 2020
The COVID-19 Survey Report May 2020, of the Trisomy 21 Research Society (T21RS) is available for download here (PDF).
Down syndrome COVID-19 clinician survey
The Trisomy 21 Research Society (T21RS) is collecting vital information to understand the risks and course of COVID-19 among people with Down syndrome (DS). The goal is to learn if people with DS are more vulnerable or have a different course of illness related to COVID-19 and if their illness is related to their pre-existing health […]
DSi COVID-19 survey
The DSi has sent all its members a questionnaire with questions about the situation of people with Down syndrome and COVID-19 with the aim of getting an overview of how the corona virus affects people with DS and their families in each country.The results of this study are now summarised in this report.DSi_COVID-19_survey-summary-of-results-for-members (PDF)
T21RS meeting in Barcelona June 2019
The third International Conference of T21RS – a great success The third International Conference of T21RS held last June in Barcelona gathered a total of 429 participants from 36 countries, scientists, families, and industry representatives. The most represented countries were Spain, USA, France, Italy, United Kingdom, and Brazil, but we had attendees from many other […]