EUROPEAN DOWN SYNDROME ASSOCIATION

30 Years EDSA – that’s what members say

EDSA 30th anniversary 1987-2017

EDSA 30th anniversary 1987-2017 – What does it mean to you/your organization, being an EDSA member and what should EDSA focus on in the future? These two questions were answered by some of EDSA board members. Lars Brustad (NNDS Norway) NNDS – the Norwegian Down syndrome organization – has been a member of EDSA for many […]

Conference in Moscow

Speakers Anna Portugalova, Director Downside Up and Florence Garrett

Conference on the occasion of the 20th anniversary of Downside Up Charitable Fund – This year the Downside Up Charitable Fund in Moscow celebrated its 20th anniversary with a national conference, themed: “People with Down Syndrome and other special mental needs: Right for the future”. Downside Up Charitable Fund is an EDSA member since many years. […]

30 Years EDSA – a Personal Statement

EDSA 30th anniversary 1987-2017

EDSA – 30 years EDSA 30th anniversary 1987-2017. Erik de Graaf, former director of the Stichting Down Syndroom in the Netherlands and one of the founders of EDSA, was asked to answer some questions and give some thoughts to the importance of EDSA for the dutch DS-organization during the last 30 years and for his […]

EDSA 30 years plaque for the Russian organization Downside Up

Tania Michalenko and Cora Halder hand over a plaque and a book to Anna Portugalova for the 30th anniversary of EDSA.

20 years celebration of Downside Up – December 1./2. 2017 the Russian member of EDSA, Downside Up, celebrated their 20th anniversary with a very well attended national conference in Moscow, Russia. Through the “Invite an expert”-project of EDSA, Cora Halder was invited to speak at this conference about the topic school-inclusion. EDSAs vice-president Tania Michalenko travelled from […]

Secondo il vento faremo le vele.

“Secondo il vento faremo le vele“ – a course and an experience designed to get people with DS prepared for living as adults. An old maritime proverb underlines the need to get prepared and face the “sea“ (with its difficulties), which is a metaphor to say that to navigate, it is necessary to know the wind and […]

DOWN TO EARTH ROAD

down-to-earth_logo

Awareness campaign DOWN TO EARTH ROAD has started! Adem Colak who has a brother with Down Syndrome and is one of the volunteers of our EDSA member, the turkish DS Association, is also a passionate motorbike driver. He will drive from Istanbul to North Cape and back, visiting 25 countries and will use this trip […]

Down syndrome in Iceland virtually disappearing

With the rise of prenatal screening tests across Europe and the United States, the number of babies born with Down syndrome has significantly decreased, but few countries have come as close to eradicating Down syndrome births as Iceland. Since prenatal screening tests were introduced in Iceland in the early 2000s, the vast majority of women […]

The INV-Project

Young women with Down syndrome on a pedestrian crosswalk, spreading her arms

“What is essential is invisible to the eye“ (INV). What is INV all about? A pedagogical model, a conceptual framework for the relationship established between the professional and the person with intellectual disabilities. Whom is “the essential is invisible to the eye“ for? INV is addressed to those who live and/or work with people with a (severe) […]

My Opinion My Vote

Logo My Opinion My Vote

ALL CITIZENS HAVE THE RIGHT TO BE ACTIVE IN SOCIETY. PEOPLE WITH DISABILITIES, TOO. M.O.T.E. – My Opinion, My Vote’s website is a product of a European Project on the rights of people with intellectual disabilities to express their opinion and vote. On the website, there are information and materials are offered on this topic on […]

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