EDSA Talks with the Down Syndrome Association of Greece
In our series “EDSA Talks“ Dinka and Cora had a very nice conversation on 19th January 2026 with our member the Down Syndrome Association of Greece. We spoke with Sophia Voukanci, who is the deputy director of the association and Danai Papadopoulou, who works as a social worker in the organisation. The association is based […]
Spotlight talks – Down’s Syndrome Association UK
Across Europe, organisations supporting people with Down syndrome operate in diverse national contexts, each delivering vital work. EDSA’s goal is to bring this essential work into the spotlight! We aim to: Recognise the impact of these organisations Facilitate mutual learning and knowledge exchange This is the mission behind EDSA Spotlight, our new webinar series […]
Update of the EU’s disability strategy
The European Disability Strategy has been updated! What is it? This Strategy was adopted on the 6th May 2026 by the European Commission, and it sets objectives to improve the lives of people with disabilities from 2021 until 2030. This Strategy is divided in 2 timelines, meaning that there has been a new set […]
eNewsletters
EDSA Newsletters are now fully digital! Explore the links below to catch up on our latest eNewsletters, filled with news, updates, stories, and happenings from across the EDSA community. January 2026 – Launch March 2026 – WDSD edition May 2026 – New address Sign up for the eNewsletter !!! Got something to share? We welcome […]
A new chapter for inclusion: Joeanna Xerri and Pat Clarke elected at the European Disability Forum
The European Down Syndrome Association (EDSA) proudly congratulates Joeanna Xerri and Pat Clarke on their election at the European Disability Forum (EDF), marking an important moment for the representation of people with Down syndrome and their families across Europe. (edf-feph.org) Joeanna Xerri has been elected to the EDF Board of Directors for the 2026–2030 mandate. […]
The silent crisis: 88% of families face isolation
Loneliness is not just a statistic for families of people with Down syndrome in Europe; it is a daily reality. During the recent World Down Syndrome Day event in Brussels, the European Down Syndrome Association (EDSA) showed shocking findings from a landmark survey that exposed the severe fragility of social networks for the Down syndrome community. The results paint […]
A new voice for Inclusion: EDSA Nominates Joeanna Xerri to EDF Board
Brussels, 2026 – The European Down Syndrome Association (EDSA) is proud to announce a transition in its leadership at the European level. On the 9-10 May 2026, is the European Disability Forum (EDF) general assemble and elections, EDSA has officially nominated Joeanna Xerri to join the Board of the EDF. Why This Matters The EDF is the premier umbrella organization representing the rights and interests of people […]
EDSA Talks with Fundación ASNIMO, Mallorca
On 2 December 2025 our EDSA Talk took place with Fundación ASNIMO, our EDSA member organisation in Mallorca. Dinka, Monika, Isidro and Cora from the EDSA Board, together with Amanda, Izaskun and José Molina representing Fundación ASNIMO, took part in this Zoom meeting. ASNIMO belongs to the founder organisations of EDSA. Fundación ASNIMO – […]
EDSA event at the European Parliament for WDSD2026
On 25 March 2026, EDSA organised an event in the European Parliament for the World Day Syndrome Day together with EU for Trisomy 21 and Jerome Lejeune Foundation. The theme of this year’s World Down Syndrome Day was “Together Against Loneliness.” Two events were organised: “Coffee for Inclusion” and the conference “Together Against Loneliness.” The […]
Lead your way project
Delivers Key Resources for Supporting Employment Inclusion! We are thrilled to announce the publication of two key deliverables from the LEAD YOUR WAY project that will significantly contribute to supporting employment inclusion for people with Down syndrome and intellectual disabilities (DS/ID) across Europe. 1.Research Report on Supported Employment in Europe The Research Report provides a […]