EUROPEAN DOWN SYNDROME ASSOCIATION

This year (2023) the EDSA Annual General Assembly (AGA) could be hold as a face-to-face meeting again, after three years of online meetings due to the pandemic. 37 delegates representing 25 different DS Associations from 21 European countries met from 27–29 October in Madrid.

The last EDSA Board was elected 2020 and was in office until this year 2023. During the AGA in Madrid the election for the new Board was held. EDSA members could nominate candidates beforehand. The current elected Board will stay in office until 2026.


EDSA’s Board members are currently:

Dinka Vukovic

President
Dinka Vukovic, Zagreb, Croatia
Croatian Down Syndrome Association (CDSA)
Family

Vice President
José Guitiérrez Caballero, Madrid, Spain
Down España
Professional

Fulya Ekmen

Vice President
Fulya Ekmen, Istanbul, Turkey
Turkish Down Sendromu Dernegi (TDSD)
Family

Treasurer
Isidro Moyano Barea, Prague, Czech Republic
DownSyndrom CZ
Family

Monika Mazegger

General Secretary
Monika Mazegger, 
Austria
Down Syndrom Österreich (DSÖ)
Family

Maida Agic

Board Member
Maida Agic, Sarajevo, Bosnia and Herzegovina,
Zivot sa Down Sy
Family

Carol Boys

Board Member
Carol Boys, London, United Kingdom
Down’s Syndrome Association (DSA)
Family

Pat Clarke

Board Member
Pat Clarke, Drogheda, Ireland
Down Syndrome Ireland
Family

Michaela Hilgner

Board Member
Michaela Hilgner, Nürnberg, Germany
Deutsches Down Syndrom InfoCenter
Professional

Nathanaël Raballand

Board Member
Nathanaël Raballand, Vendée, France
Fédération Trisomie 21 France
Family

Board Member
Joeanna Xerri, Malta,
Down Syndrome Association, Malta
Family


Senior Board Observers

Frank Buckley

Frank Buckley, Cumbria, UK
Down Syndrome Education International (DSE International)
Family

Cora Halder, Nürnberg, Germany
Deutsches Down-Syndrom InfoCenter
Family

Jacquelin London, Paris, France
Association Française pour la Recherche sur la Trisomie 21 (AFRT)

Tania Mykhailenko

Tania Mykhailenko, Kyiv, Ukraine
Ukrainian Charitable Organization Down Syndrome
Family


Junior Board Observers

Valerija Buzan

Valerija Buzan, Ljubijana Slovenia
Down Syndrome Slovenia

Professional

Veronique Garrett
Founding Trustee Downside Up, Moscow, Russia
Family

Carlotta Leonori, Rom, Italy
Associazione Italiana Persone Down (AIPD)

Professional

Jillian Reichenbach Ott

Jillian Reichenbach Ott, Antenne Vaud, Switzerland
Association Romande Trisomie 21 (ART21)

Family