Together Against Loneliness
Discover the 2026 EDSA poster collection, dedicated to the theme Together Against Loneliness
Webinars
We organize webinars focused on sharing knowledge and best practices related to Down syndrome. These sessions cover a broad range of topics, including health, education, inclusion, and independent living, promoting greater awareness and support across Europe
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The European Down Syndrome Association (EDSA) is a non-profit organization supporting and representing people with Down syndrome across Europe.
Latest news
In our series “EDSA Talks“ Dinka and Cora had a very nice conversation on 19th January 2026 with our member the Down Syndrome Association of Greece. We spoke with Sophia Voukanci, who is the deputy director of the association and Read More...
Latest news
Across Europe, organisations supporting people with Down syndrome operate in diverse national contexts, each delivering vital work. EDSA’s goal is to bring this essential work into the spotlight! We aim to: Recognise the impact of these organisations Facilitate mutual learning Read More...
Latest news
The European Disability Strategy has been updated! What is it? This Strategy was adopted on the 6th May 2026 by the European Commission, and it sets objectives to improve the lives of people with disabilities from 2021 until 2030. This Read More...
Latest news
EDSA Newsletters are now fully digital! Explore the links below to catch up on our latest eNewsletters, filled with news, updates, stories, and happenings from across the EDSA community. January 2026 – Launch March 2026 – WDSD edition May 2026 Read More...
Latest news
The European Down Syndrome Association (EDSA) proudly congratulates Joeanna Xerri and Pat Clarke on their election at the European Disability Forum (EDF), marking an important moment for the representation of people with Down syndrome and their families across Europe. (edf-feph.org) Read More...
Latest news
Loneliness is not just a statistic for families of people with Down syndrome in Europe; it is a daily reality. During the recent World Down Syndrome Day event in Brussels, the European Down Syndrome Association (EDSA) showed shocking findings from a landmark survey that Read More...
Latest news
Brussels, 2026 – The European Down Syndrome Association (EDSA) is proud to announce a transition in its leadership at the European level. On the 9-10 May 2026, is the European Disability Forum (EDF) general assemble and elections, EDSA has officially nominated Joeanna Xerri to join the Board of the EDF. Read More...
Latest news
On 2 December 2025 our EDSA Talk took place with Fundación ASNIMO, our EDSA member organisation in Mallorca. Dinka, Monika, Isidro and Cora from the EDSA Board, together with Amanda, Izaskun and José Molina representing Fundación ASNIMO, took part in Read More...
Latest news
On 25 March 2026, EDSA organised an event in the European Parliament for the World Day Syndrome Day together with EU for Trisomy 21 and Jerome Lejeune Foundation. The theme of this year’s World Down Syndrome Day was “Together Against Read More...
Latest news
Delivers Key Resources for Supporting Employment Inclusion! We are thrilled to announce the publication of two key deliverables from the LEAD YOUR WAY project that will significantly contribute to supporting employment inclusion for people with Down syndrome and intellectual disabilities Read More...
WDSD 2026: “Together Against Loneliness”
EDSA’s priorities may be summarized as follows:
EDSA’s priorities
may be summarized
as follows:
Protection of the rights of people with Down syndrome
The provision of genetic counselling when diagnosis has been confirmed
Diversity in education initiatives
Promoting access to employment and providing guidance for adult life
Providing guardianship services and training specialists
Promoting positive social images
Supporting research and the development and implementation of new technologies
Guaranteeing professional and dedicated association leadership.
A periodic EDSA newsletter is being published and distributed with news from EDSA member associations about EU-projects, conferences, interesting activities or new publications.
EDSA members
